Caring for someone with DTDS is not just a full-time role — it’s constant. Appointments. Medication schedules. Feeding plans. Monitoring breathing. Advocating. Researching. Planning ahead. Caregiver burnout is real. And acknowledging it does not diminish your strength or love. If you’re feeling stretched thin, here are a few small ways to protect your energy: • Accept specific help (meals, pharmacy pickup, school drop-offs) • Schedule short, intentional breaks — even 15 minutes matters • Connect
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